How does cerebral palsy affect people? | Cerebral Palsy Alliance Research Foundation
People with severe cerebral palsy may also have difficulties with swallowing, their ability to do things for themselves, to sleep and their social relationships. People Children with cerebral palsy may experience specific learning difficulties. But when you have CP, it can complicate matters a little, both physically and emotionally. And while I've The Problem With Myself. My biggest. When a child is diagnosed with cerebral palsy (CP), their entire family is education about cerebral palsy and the challenges that families face.
Also notable is the reported shame about their bodies and the psychological barrier that scars can represent. This can mean that, as a result, young adults with CP had a positive image of their appearance with clothesbut they can have a negative body image the naked body.
It is clear that many young adults with CP need support with their problems with sex. This involves help with physical aspects such as spasticity and restricted manual ability, on the one hand.
On the other hand, it also involves psychological support for acceptance of their physical and sexual self-image, as well as learning to discuss limitations and opportunities with a partner. In addition, information on aspects of reproduction and genetics is needed.
Despite the perceived problems and the need for information, it is striking that sexuality rarely comes up as a topic of discussion in the rehabilitation of young adults. In pediatric rehabilitation, sexuality is not a subject that is discussed with parents by health care professionals. The physical constraints are paramount, followed by behavioral and learning issues.
They often do not realize that developing a positive body image is important, or that they should provide space for the sexual feelings of their child. Because many young people with relatively mild disabilities leave pediatric rehabilitation at an early age, sexuality has commonly not been a topic of discussion for professionals, parents and youngsters.
During the transition phase, young people have to learn to understand their bodies, their illness and limitations, and they also need to learn to request help. In addition, in this phase it becomes increasingly important for the young person to be able to speak without his parents about sexuality.
Sexuality is a subject that many young people do not easily talk about in the presence of their parents, especially if parents also do not feel comfortable discussing the topic. As so many people find it difficult to discuss sexuality, it is the responsibility of the professional to raise this issue. Our research clearly shows that a significant number of young adults with CP experience problems with sexuality, and that they need help and diagnosis-specific information.
In adult rehabilitation, professionals usually are faced with the consequences of the recent onset of disease. In contrast, CP is a congenital disability. Problems with sex should thus be seen more from a developmental perspective. Developing intimate relationships and exploring sexuality are central, instead of changes in sexuality.
People with CP are developing sexually at an older age [ 17 ] and are consequently confronted with sexual problems later. Conclusion A significant number of young adults with CP experiences both physical and emotional problems with sex. They need diagnosis-specific information and may need assistance discussing sexual issues with their partner. Rehabilitation professionals need to take the initiative during their regular contact to discuss potential problems with sex that young adults with CP might encounter.
Acknowledgments The authors wish to thank all the participating young adults with CP. Open Access This article is distributed under the terms of the Creative Commons Attribution Noncommercial License which permits any noncommercial use, distribution, and reproduction in any medium, provided the original author s and source are credited. The descriptive epidemiology of cerebral palsy.
Adult outcomes and lifespan issues for people with childhood-onset physical disability. Health issues in young adults with cerebral palsy: Transition of care from paediatric to adult rheumatology.
How to Keep Functioning as a Family When a Child Has Cerebral Palsy
Psychosexual development in adolescents with chronic medical illnesses. Importance of peers and dating in the development of romantic relationships and sexual activity of young adults with cerebral palsy. Sexual behavior of adolescents with chronic disease and disability. Suris JC, Parera N.
Sex, drugs and chronic illness: Sexual behaviors of physically disabled adolescents in the United States. My first piece of advice is to remember that everyone goes through the awkward stages of a new relationship and getting to know someone, regardless of disabilities.
I clearly have a physical disability, but I used to think that it was best just to ignore that obvious fact unless my partner or potential partner wanted to talk about it. But that makes the situation awkward for both sides of the relationship.
How to Keep Functioning as a Family When a Child Has Cerebral Palsy | Everyday Health
The person with disabilities feels on guard, just waiting for the hammer to drop. Remember, they like you and have an interest in you, regardless of your disability.
So, talk about it. You could always take the initiative and call to ask, or you could visit the places, of course. If you ask if they want to go, this leaves the conversation open to the ways of making the outing work.
Relationships Play Key Role in Cerebral Palsy Patients' Quality of Life
If you ask if they can go, your partner might suddenly feel uncertain or overwhelmed about how it could work. My next piece of advice is to stay open — both of you. I think, as someone with a disability, we can sometimes be a little cynical and assume the worst of people. If you need help, ask. Your partner will be more than willing to help; this will become second nature over time anyway.